Thursday, February 9, 2012

That's Your Mommy!

We had a 9am appointment at NYU for Madison’s activation this morning.  Madison’s behavior and responses would dictate whether one or both of her ears would be activated.  She did extremely well and both of her ears were activated!  In addition to the NYU audiology staff, a representative from Advanced Bionics was present, as Madison was the first Neptune device activation at NYU.

The staff had already put the Neptune device together, with pink accent covers, which matched Madison’s attire just beautifully!  The magnet inside the Neptune device quickly found the implant and stuck to the outside of her head. Brian and I didn’t know what to expect for the activation...  We were told that she may cry, she may laugh, she may do nothing.  What transpired was a set of reactions similar to her sound booth appointments, but without blaring noises being pumped directly into her ear.  Instead, she was reacting to sound (and sometimes even turning towards sound) that was at conversation levels.

Activation - Left Ear


video


Everyone was happy with her reactions to the left ear, so they moved onto the right ear.  Again, Madison’s reactions were very similar.  She has always been an extremely attentive child – as we would expect since she’s hard of hearing.  However, during the appointments, it seemed as if she was trying to get everything in, almost on information overload.  She was extremely quiet and only said something once or twice during the entire 1.5 hours.  

Activation - Right Ear


video


The second half of the appointment was spent with our audiologist and AB representative going over the “two suitcases” we received that was full of equipment, parts, gadgets, etc.  There is a lot of maintenance that will need to be done throughout the day, as well as end of day.  Because there was so much to learn and digest on day 1 (not just for Madison), we will not be receiving/activating her Harmony (backup) device for a few weeks… where we will receive two more suitcases.

The devices were not turned on to full blast.  Instead, the first 3 programs they installed will introduce Madison to sound.  In fact, we need to head back tomorrow to get another set of mappings done…  then a third appointment the following week.  She will then return every month and receive an evaluation mid-May, where she will be put in the sound booth.  Following this evaluation, we were told that Madison would return roughly every 3-4 months until she is an adult – where she will than go for annual visits.  Yes, a lot of appointments for the little lady!!

In the afternoon, we took Madison to The Center for her daily speech therapy appointment with Jessica.  Before our session started, we were greeted by the entire staff - who were so happy to see Madison sporting her new implants! We started at The Center about 6 months ago, and today was really the first day Madison could truly hear sound.   Back in a similar environment, Madison was super-chatty during her session.  Responding to sound, playing with toys.  It was a wonderful seeing her so happy.

There is a long road ahead of us… Many days filled with tears of joy and many days filled with heartache and sorrows.  We look forward to enjoying many rewarding moments as Madison embarks on this journey to sound – many of which most people take for granted.  We hope to give Madison the strength she needs to overcome the many challenges that she will face as she grows older.   

5 comments:

  1. Happy Hearing Birthday Miss Madison. For 8 months you have felt all the hugs and love and now you can hear how much your mommy and daddy love and adore you. You have an entire army of people rooting for you. Can't wait to see you! Much love! Jen, Michael and Hannah

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  2. Happy Activation, Madison! What an exciting day and it sounds like it was AMAZING! I can't wait to read about the wonderful times ahead. :)

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  3. How precious is she! When she turns after hearing the clicking noise- filled our hearts will joy. We can't wait to see the little one. Such great news!

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  4. Brought tears to my eyes, congratulations to you all! I loved watching the videos!

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  5. Such an exciting beautiful day! Congratulations! These next few weeks are going to AMAZE you I guarantee it. Please keep me posted! A word of advice, remember it is a marathon, not a sprint. Take one day at a time and don't forget to ENJOY your baby. Some days will show progress and some days won't show any at all. Please email me anytime if you have questions or want to chat amydedomenico@yahoo.com. I am so excited for you!

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