Saturday, June 30, 2012

Madison's CHC Fundraiser

September 30th, 2012 - SAVE THE DATE

Immediately following the NYC Walk4Hearing, Brian and I will be holding a fundraiser for Madison.   It will be held at The Junction NYC Bar & Grill to support the Center for Hearing and Communication, a not-for-profit organization that provides life-affirming hearing healthcare to  over 20,000 infants, children and adults annually. The event will be held from 1-3pm and culminates with a grand raffle. 

The Junction NYC Bar & Grill
329 Lexington Ave 
New York, NY 10016
(212) 682-7700

$50 per person, includes a two hour open bar, hors d'oeuvres and the chance to win a door prize.  
We will also be selling individual raffle tickets for a chance to win autographed sports items, children's toys and other prizes.  All proceeds to benefit The Center for Hearing and Communication.

To RSVP for this event, please view our Evite at Madison's CHC Fundraiser.

Please check this blog posting periodically for updates.

Monday, June 18, 2012

Happy Father's Day

This is my second father’s day.  Last year Madison was only a few days old, and the three of us went to the local diner to get some breakfast.  It was arguably the quickest meal of my life - I felt that before we even finished ordering the food, our meals were in front of us.  We each had about half of our omelets, and then Madison started crying.  Immediately, we knew it was time to go.  I was hungry and sleep-deprived, and all I wanted was just some R&R for my day.   Little did my wife and I know what we had in store for us over the next twelve months.  It would be a few more weeks until we learned about Madison’s hearing loss, and then several more months after that day in July until we learned of the reason why.  I think about it constantly, but I now try and focus on what the future will bring. Madison will be walking soon, she loves to pull herself up and walk along the side of the couch.  Her first word is definitely “AH” for Alan, but I think her second word will be “daddy.”

This year we spent the day out on Long Island with Jennifer's family.  Madison experienced her first ride on a boat!! She was not a fan of wearing the life jacket and let us know very quickly... instead of riding out on the ocean, we rode back to the dock and had lunch on solid ground.  Guess we will have to wait until Madison is a little older until we ride the waves again.  Here are a few pictures from the day.

Sunday, June 10, 2012


Madison turned ONE on June 8, 2012.  We celebrated her birthday with a party at our apartment with family and friends on June 2nd.  Madison had a monkey-themed birthday party.  Our daughter has always been fascinated by monkeys… In fact, one of the flower baskets that we received after Madison’s birth came with a stuffed monkey.  This animal quickly became Madison’s favorite toy.   In addition to a monkey birthday cake, we had a “balloon artist” from the neighborhood perform for all the little kiddies.  Madison had 6 little friends attend her party, and about 25 adults.  The weather was perfect and we had the event on the rooftop of our building.

With Madison being a year old – naturally, Brian and I have been doing some reminiscing.  Imagine where we were a year ago?  Who would have thought the last 12 months would have gone how they did?  June 8, 2011 was the greatest day of our lives – and we love Madison so much!  From those who are living a similar journey to us, or who are a few years ahead of us – we are constantly reminded to enjoy your little child.  Take a step back from all the therapy and emotions and appreciate the fact you have a beautiful little muchkin!  Today, on our trip to the grocery store, Madison was wearing a sun hat and she kept on trying to put it on her head.  It was so cute…seeing her try to put the hat on her head and getting so frustrated.  Or, seeing her watch the trains at Grandma & Grandpa's house this weekend…and seeing how excited she would get – hence, reminding me of my childhood. 

It has been 10+ months since we learned of the degree of Madison’s hearing loss.  It has been less than 5 months since her surgery…and about 4 months since her activation.  12 months ago I never would have thought how seeing my daughter turn to her name is surreal.  Madison babbles and is continually introducing new sounds.  She rattles off Ma Ma Ma and Da Da Da, but there is no meaning at this moment for either of those.  I believe her first (true) word is “AH” for Alan (Al).  It’s the only time she says “AH” and always points towards the dog.  It really is her best friend.  While her speech is progressing, we feel that her listening and comprehension is really starting to pick up.  This weekend, Grandpa taught her where her “eyes” and “ears” were and she would touch them when asked.  We even had Madison in one of those inflatable plastic outdoor pools in Grandma and Grandpa’s backyard.  She was a happy baby with a diaper under her swimsuit, and then…she looked up when she heard the plans make their descent into JFK!!!!  And she kept on looking up every time the planes came by… and would point to the sky and say “AAAAAAHHHHH”!  Finally, another event took place this weekend…Madison’s device fell off her ear and she tried to put it back on her head.  I couldn’t believe what I saw…so I knocked it off her head a few minutes later and sure enough – she reproduced the same action…grabbing the processor and trying to put it back.  We never doubted the decision we made to go down the path we chose, however, right then and there, we knew that we made the right decision.  We will attempt to get this on video!

I’m so excited for what the next 12 months will bring, but need to make sure that I cherish and appreciate this next year.  I have learned so much this past year... more than I ever knew was possible.  I am so thankful for how far we have come and continue to look forward to what the future will bring!

Happy Birthday to our sweet (baby) Madison! We love you XOXO